Friday, May 9, 2008

The latest->

Sean had his appointment in Chicago today with Dr.Richards (Dr.Hallmeyer's partner, she is in Germany!). The appointment went well, but the drive is horrible! It takes around 5 hours to get there, then we spend 15 minutes at the doctors office and drive 5 more hours home! Dr.Richards continues to be impressed at how well Sean is doing. He has gained just a couple more pounds bringing him to 123 (better then losing weight!). Scans will be coming up shortly, probably around the 21st- I just have to call to get them set up here. Sean will only have a chest CT and an MRI this time, so he is relieved he will not have to drink the barium! I am already quite anxious for Sean's scans, as he has a couple of swollen nodes that we were not sure if they were there before, but it is possible they were there the whole time and we never noticed... None of Sean's oncologist seem concerned at all about them at this point, so I can relax a little for a few weeks now! Sean seems to be getting stronger and stronger everyday now! I think he enjoys being able to help out a little with the girls (or at least play with them)! He is back to going to physical therapy and I think that will help him recover quickly! His physical therapist said he was doing well, and Sean could even do stuff he did not think he could do! (sit on the floor, then stand back up without any help-crucial for playing with a 1 year old!). Sean does have the occasional bad day and he will be completely worn out and everything hurts->I think he definitely over does it (and the long car rides are not good on him either). Usually it is just for a day or two and then he is back to recovery!
We are just about settled into the new house. I still have about a million boxes to unpack that are out in the garage, but I have not even had time to open the garage door, let alone go inside it! Sean has been getting very bored sitting at home all day now that I am working full time again, so he has been trying to find things to do! He will be volunteering soon at Camp Newaygo here to kill some time and have fun. He is also going to be volunteering for Newaygo County Community Services (NCCS), but he has a difficult time driving our car because it is manual, so he cannot go as much as he would like to.
The girls are doing okay. They are both sick right now, mainly Addie. She has had a horrible cough the last few days and a bit of a fever- she also started complaining her ear hurt yesterday, so looks like we will have a trip to her doctors soon. Ella is wild as ever, now that she can walk, she thinks that she can run! We will start potty training soon, so wish us luck!

Some great friends and family of ours are putting together a benefit for Sean to help us out with our trips to Chicago and expenses we have occurred... If you are in the area and would like to come, please do stop by! I am posting a flyer at the end of this post, I believe if you click on it, it will become larger. I am looking forward to being able to get out and see everyone and I know it will be a good thing for Sean to have everyone spending time with him! Hope to see you there!



7 comments:

Red Eagle said...

Nicole, I have thought of you and Sean daily during the time I have been helping my daughter and family with their move (in the Colorado mountains). I have not had Internet access most of the past month. I would gladly wait another month, if the news about Sean will be be so good!
I wish I could have been there to help with your move. I'm looking for your email address.
It means so much for the kids to be able to play outside. My six Grandkids love their move to where they have much room outside and my 14 year old granddaughter feels safe enough to take the family dogs on a 1-3 mile walk daily.

Still say that in some ways Sean is a lucky man.

Red Eagle said...

Nicole, I have thought of you and Sean daily during the time I have been helping my daughter and family with their move (in the Colorado mountains). I have not had Internet access most of the past month. I would gladly wait another month, if the news about Sean will be be so good!
I wish I could have been there to help with your move. I'm looking for your email address.
It means so much for the kids to be able to play outside. My six Grandkids love their move to where they have much room outside and my 14 year old granddaughter feels safe enough to take the family dogs on a 1-3 mile walk daily.

Still say that in some ways Sean is a lucky man.

Red Eagle said...
This post has been removed by a blog administrator.
Anonymous said...

stacy,
i have contacted kelly on this and will help all we cn.we are putting some donation cannisters in the bars and 7-11's in saginaw and at my work hopifully will help some.god bless all.
love aunt deb & uncle tom

Katie Clancy said...

Hi, you don't know me, but a dear friend of mine Jeff Dodd is also fighting melanoma and he told me about you site. If you can post an address of where we can send a donation, we'd like to contribute to your fund. Maybe in a future blog you can tell me where to send a check? Or feel free to email me directly.
Thanks and best to you and your family.
Katie

Katie Clancy said...

Hi, you don't know me, but a dear friend of mine Jeff Dodd is also fighting melanoma and he told me about you site. If you can post an address of where we can send a donation, we'd like to contribute to your fund. Maybe in a future blog you can tell me where to send a check? Or feel free to email me directly.
Thanks and best to you and your family.
Katie

Katie Clancy said...

Forgot to leave my email! katie@clancyassociates.com