Overwhelmed... that is the exactly how I feel at this very moment! Okay, update on everything-> Sean had his appointment down in Chicago last Friday. We found out there that Sean does have to many brain lesions for Gamma Knife, so Dr. Richards recommended whole brain radiation (WBR). Whole brain radiation (WBR) sounds so scary to me! Dr. Richards did explain some of the risks with WBR. Sean definitely has the benefit of being young and semi strong, as the risk of anything serious becomes a bit less. Sooo.. this Friday, Sean has an appointment here in Fremont with Dr.Orourke- which he will more then likely start WBR next Monday. The oncology office over there is wonderful, and they are already working on what they can to get that set up. As long as it is set up through Dr. Orourke's office, Sean will be getting radiation in Muskegon. Whole brain radiation is usually 2 weeks long for everyday, but weekends, so we may not be traveling as far, but now we have to travel EVERY day! blah. Usually during WBR, the patient (Sean) is put on steroids (Decadron) to help lessen or prevent swelling. We will be returning back to Chicago in a couple weeks also, which then, as long as Sean is off of steroids for at least a week-- he may start the ipilimubab (mdx-010, anti-ctla4) treatment! We know that his lung still seems to hold stable, but we would like to attempt more then just stable, and try for some regression of that mass.
This weekend, some friends and family held the benefit for Sean to help with medical, travel, misc. expenses... It turned out to be more then I thought it could ever be! It was held at Leighton Hall, and the hall seemed to be full the whole time! We had a pig roast, chicken bbq, games, auctions, clowns!, all sorts of fun things... A special thanks to Fondaleette (my mom), Kelly (Sean's mom), Mrs. Sharon Escalante, and Mary! Thank you so much for organizing this and for putting what all of you have into it! There were sooo many individuals, companies, corporations, and so on that have helped, I honestly do not even know where to start to thank everyone! I am so glad Sean was feeling well enough to be able to attend, I know it was great for him to be able to spend time with so many friends and family, especially the ones we have not seen in years! Thanks again everyone! Soooo... On our way to the benefit, since we have the best luck ever and all... I was driving down the road (Sean was with me) and all of a sudden, our tire decided to basically fall off--ok, so it was still attached, but it was on sideways?? I am not sure how to describe it... anyways the ball joint snapped and we were not able to drive it any longer. We came pretty close to smacking right into a a sign since i had no control of the car, fortunately it stopped just a couple feet from it! Thanks to a great friend of ours (Dan), we were able to get it fixed quickly and cheaper then it could of cost us! Thanks Dan, your awesome!
Right now I am having a little scare on my own.. I was finally able to make it to a doctors appointment for myself to have a mole that I have had for a long time checked out. The doctor said it looks a bit suspicious and would like to have it biopsied. : (. I have never had a biopsy myself, I am horrified! and not just horrified of the biopsy, but the outcome of it... the fear of knowing what could happen if I to had to deal with melanoma. The chances of it being melanoma are more then likely slim, but possible. I will have it removed on June 23rd, so please, please, everyone wish me luck! I am sure it is just nothing.
Sorry, this post has become more of just babbling, I am not even going to proof read it right now, so if all of my sentences are funky and I have a million misspelled words... oops. I will try to update soon, it has just been so hectic around here! ~nicole~
This weekend, some friends and family held the benefit for Sean to help with medical, travel, misc. expenses... It turned out to be more then I thought it could ever be! It was held at Leighton Hall, and the hall seemed to be full the whole time! We had a pig roast, chicken bbq, games, auctions, clowns!, all sorts of fun things... A special thanks to Fondaleette (my mom), Kelly (Sean's mom), Mrs. Sharon Escalante, and Mary! Thank you so much for organizing this and for putting what all of you have into it! There were sooo many individuals, companies, corporations, and so on that have helped, I honestly do not even know where to start to thank everyone! I am so glad Sean was feeling well enough to be able to attend, I know it was great for him to be able to spend time with so many friends and family, especially the ones we have not seen in years! Thanks again everyone! Soooo... On our way to the benefit, since we have the best luck ever and all... I was driving down the road (Sean was with me) and all of a sudden, our tire decided to basically fall off--ok, so it was still attached, but it was on sideways?? I am not sure how to describe it... anyways the ball joint snapped and we were not able to drive it any longer. We came pretty close to smacking right into a a sign since i had no control of the car, fortunately it stopped just a couple feet from it! Thanks to a great friend of ours (Dan), we were able to get it fixed quickly and cheaper then it could of cost us! Thanks Dan, your awesome!
Right now I am having a little scare on my own.. I was finally able to make it to a doctors appointment for myself to have a mole that I have had for a long time checked out. The doctor said it looks a bit suspicious and would like to have it biopsied. : (. I have never had a biopsy myself, I am horrified! and not just horrified of the biopsy, but the outcome of it... the fear of knowing what could happen if I to had to deal with melanoma. The chances of it being melanoma are more then likely slim, but possible. I will have it removed on June 23rd, so please, please, everyone wish me luck! I am sure it is just nothing.
Sorry, this post has become more of just babbling, I am not even going to proof read it right now, so if all of my sentences are funky and I have a million misspelled words... oops. I will try to update soon, it has just been so hectic around here! ~nicole~

3 comments:
Many prayers still coming for both you and Sean! I hope the upcoming doctor visits for you both, treatments, surgery, etc., go well.
Continued prayers!!
Hi, Nicole. I came back to re-read your post--a lot going on for you. I really hope Sean can get the broadest treatment options available, and that your own mole (cruel irony)turns out to be nothing. You do so well, with so much to deal with. At least the accident was minor! I will keep your family in my prayers. Best of luck to you all.
Oh Nicole - I so hope that Sean can have the gamma knife and that it is able to wipe out all the tumors. I hate this disease and all the pain and stress it brings. I send you big hugs and many blessings to you and your family. Hang in there - you are an amazing woman.
Kathie (wife of Bob Stage IV)
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