Okay, after much research, consultations and everything in between, Sean's best option seems to be whole brain radiation. Which sucks, but we are dealing with it and we need to get the ball rolling! I am definitely scared of this treatment and the side effects that may come with it... so for now, I am trying to stick with the positive. Things Sean has going for him that may help minimize WBR side effects are that he is young, his karnofsky score* is descent, he seems to be getting stronger and stronger each day and his lung seems to be stable. He is not to worried about the hair loss symptom (I think he like sporting the bald look after chemo-bald is beautiful!). Our hopes are for him to get this WBR done and behind us and he will possibly start MDX-010 shortly after. Thanks everyone who have been thinking of us. I will let everyone know when we know when Sean will start WBR. ~nicole~
*The Karnofsky score is another method which measures patient performance of activities of daily living
*The Karnofsky score is another method which measures patient performance of activities of daily living
4 comments:
Great to hear you have a plan. Keep up that positive attitude and move forward. I will be saying special prayers for you both.
Jenni
Many thoughts and prayers still coming for you and Sean!!! I hope things go well, and we'll all continue to pray for you both.
Hi, Nicole, I know you have studied this very thorougly and can have confidence in your plan and move forward with it. I hope and pray for the very best of results for Sean on the WBR and future treatment.
Wishing Sean a Happy Father's Day!
Post a Comment